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About UsNo parent should ever have to accept that there is no hope to save their child's life. Having battled TTTS, we experienced firsthand the power of hope. Thanks to vigilant seeking of information, we were able to reach hope. For us, our miracle worker was Dr. Quintero who saved our babies lives. Today we have two beautiful healthy twin girls. They have no affects, health issues or otherwise from their battle for survival. We know we were very lucky to not only have them survive, but without any adverse affects is nothing short of a miracle. With our battle a success we could have easily taken this victory and returned to a normal life. However, that was not us and we knew that awareness was the key to providing hope to others being affected. In 2004, Lonnie left his full time position as a CFO and spent the next eight months creating the TTTS Race for Hope organization and event. The TTTS Race for Hope’s mission is to raise awareness through its events, support other organizations missions in fighting TTTS, and fund medical research. Within its 2 years, the TTTS Race for Hope reached more than 1 million people directly and indirectly through its events and awareness campaigns. The first two events, in Denver, raised more than $50,000 and has become a main attraction. In 2006, the Fetal Hope Foundation, a 501(c)(3) non-profit charity, was born from the TTTS Race for Hope. Fetal Hope was created to align a truly patient supported foundation to the leading fetal maternal medicine centers and doctors around the world, to support additional fetal distresses and syndromes that are not currently supported by other organizations, to provide factual medical information on fetal syndromes, to provide unconditional support to families dealing with these syndromes, and to provide an outlet for the fetal medicine centers and doctors to publish and inform the public on new technologies providing hope to save our babies. Fetal Hope and TTTS Race for Hope Founders - Lonnie & Michelle Somers Fetal Hope’s mission The Fetal Hope Foundation's mission is to provide support, provide information, fund research, increase awareness and be an outlet for leading medical information pertaining to fetal distresses and syndromes. We are all about arming families and healthcare providers with information and helping to save babies' lives. In order to provide leading and accurate information, Fetal Hope’s organization contains a medical advisory board. The Fetal Hope Medical Advisory Board is comprised of leading fetal medical centers and doctors. To assist Fetal Hope in its missions and goals, the organization contains an active and prominent advisory board. Fetal Hope is managed and run by those that have been affected directly and indirectly by various fetal syndromes. Together we are Leading the Way to HOPE…… |
Sunday July 6th, 2008
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Disclaimer: Fetal Hope’s website is designed to provide useful information for patients faced with these conditions. Our medical advisory board will periodically review the information contained herein for factual accuracy. Fetal Hope, its staff, and its affiliates are not medical experts and information contained herein and through other means from Fetal Hope should not be used for medical diagnosis or medical advice. Please seek qualified medical attention if you are afflicted with any of these conditions. |
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