Comments for Fetal Hope Foundation http://www.fetalhope.org/blog Leading the way to HOPE.... Fri, 30 Jul 2010 16:01:23 +0000 http://wordpress.org/?v=2.2.2 Comment on Heartache and Hope by reina13 http://www.fetalhope.org/blog/?p=23#comment-201 reina13 Thu, 03 Jun 2010 16:19:26 +0000 http://www.fetalhope.org/blog/?p=23#comment-201 AMAZING story! I am glad you decided to write your story for all to read. Hopefully it will touch someone, who might not be too sure about this God of ours, and decides to give it up to HIM during their trying time. My girls were diagnosed with TTTS and were born at 25 weeks. The road was long and filled with many hurdles. I cannot say i understand the loss of a child, but we came super close many times with our girls. I loved reading that you were able to grow stronger in your faith after re-assessing some things. That's so encouraging! Our God is faithful, and He will never leave us :) (My blog is password protected, but if you'd like to check it out, please send me an email with your email address so i can add you to the list of readers...ccluv at verizon dot net) AMAZING story!

I am glad you decided to write your story for all to read. Hopefully it will touch someone, who might not be too sure about this God of ours, and decides to give it up to HIM during their trying time.

My girls were diagnosed with TTTS and were born at 25 weeks. The road was long and filled with many hurdles.

I cannot say i understand the loss of a child, but we came super close many times with our girls.

I loved reading that you were able to grow stronger in your faith after re-assessing some things. That’s so encouraging!

Our God is faithful, and He will never leave us :)

(My blog is password protected, but if you’d like to check it out, please send me an email with your email address so i can add you to the list of readers…ccluv at verizon dot net)

]]> Comment on The story of Kate and Kennedy Fletemeyer by CindyB http://www.fetalhope.org/blog/?p=18#comment-183 CindyB Tue, 05 Jan 2010 16:34:03 +0000 http://www.fetalhope.org/blog/?p=18#comment-183 Thank you for sharing your story. I lost my boys Jack and Ben to TTTS in April 2008. Your story is so similar to mine, but without the fetal demise. I understand what every moment of your every day was like during the pregnancy. We ran in the race this year with our 3yr old (a surviving fraternal twin), and plan to honor our boys by participating every year. This year a woman in the crowd recognized my hope sign and matched it to my bib, and approached me about my boys. It was so touching, it moved me to tears. Perhaps I will be able to find you in the crowd to meet your miracles! I will remember your girl's names, as she did mine! ~Cindy Berndt, Parker, CO Thank you for sharing your story. I lost my boys Jack and Ben to TTTS in April 2008. Your story is so similar to mine, but without the fetal demise. I understand what every moment of your every day was like during the pregnancy. We ran in the race this year with our 3yr old (a surviving fraternal twin), and plan to honor our boys by participating every year. This year a woman in the crowd recognized my hope sign and matched it to my bib, and approached me about my boys. It was so touching, it moved me to tears. Perhaps I will be able to find you in the crowd to meet your miracles! I will remember your girl’s names, as she did mine!
~Cindy Berndt, Parker, CO

]]> Comment on The Gift by Jodie http://www.fetalhope.org/blog/?p=5#comment-129 Jodie Fri, 02 Jan 2009 17:42:59 +0000 http://www.fetalhope.org/blog/?p=5#comment-129 I am surfing through the Fetal Hope site, trying to find some support and help for myself as I struggle with the affects of TTTS on our lives. Your story is so similar to ours except that I didn't go into labour and was able to have the laser surgery...though we lost our recipient, Cole, the next day. I haven't heard of any other acute cases on here...my babes weighed the same and had showed now signs of it until 23w5d in a routine ultrasound. I didn't even know it could move this fast and am grateful for my little trooper still kicking me from the inside. Thanks for your story, it does help to feel connected to others in this crazy world of TTTS. I am surfing through the Fetal Hope site, trying to find some support and help for myself as I struggle with the affects of TTTS on our lives. Your story is so similar to ours except that I didn’t go into labour and was able to have the laser surgery…though we lost our recipient, Cole, the next day. I haven’t heard of any other acute cases on here…my babes weighed the same and had showed now signs of it until 23w5d in a routine ultrasound. I didn’t even know it could move this fast and am grateful for my little trooper still kicking me from the inside.
Thanks for your story, it does help to feel connected to others in this crazy world of TTTS.

]]> Comment on The miracle of HOPE never ceases to amaze! by admin http://www.fetalhope.org/blog/?p=6#comment-108 admin Fri, 05 Dec 2008 00:42:26 +0000 http://www.fetalhope.org/blog/?p=6#comment-108 Thank you Josh for informing you of your survivors. Congrats to you and your family. We figured that there had to be other triplet survivors of TTTS (or FFTS). Thank you Josh for informing you of your survivors. Congrats to you and your family. We figured that there had to be other triplet survivors of TTTS (or FFTS).

]]> Comment on The miracle of HOPE never ceases to amaze! by Josh http://www.fetalhope.org/blog/?p=6#comment-107 Josh Thu, 04 Dec 2008 21:09:00 +0000 http://www.fetalhope.org/blog/?p=6#comment-107 I'm glad to hear that everyone came out alright. I would like to clear up the misconception that they may have been the first documented triplets to have survived TTTS. My identical triplet boys were all connected (triplet to triplet to triplet transfusion syndrome) on the placenta and needed the photo-coagulation surgery. They were born @ 32 weeks on May 20th, 2008 and are now almost 7 months old and doing wonderfully. I had been searching the Internet to find if any others had survived while awaiting their outcome and I could not find any (that didn't sustain physiological or cognitive disabilities). Which didn't help my fears. I'm glad that we are starting to hear of more triplets that have made it through the fight. Josh I’m glad to hear that everyone came out alright. I would like to clear up the misconception that they may have been the first documented triplets to have survived TTTS. My identical triplet boys were all connected (triplet to triplet to triplet transfusion syndrome) on the placenta and needed the photo-coagulation surgery. They were born @ 32 weeks on May 20th, 2008 and are now almost 7 months old and doing wonderfully. I had been searching the Internet to find if any others had survived while awaiting their outcome and I could not find any (that didn’t sustain physiological or cognitive disabilities). Which didn’t help my fears. I’m glad that we are starting to hear of more triplets that have made it through the fight.

Josh

]]> Comment on The miracle of HOPE never ceases to amaze! by Angy McCarter http://www.fetalhope.org/blog/?p=6#comment-71 Angy McCarter Tue, 30 Sep 2008 17:14:31 +0000 http://www.fetalhope.org/blog/?p=6#comment-71 Those boys are amazing and I am so glad things are going great for them. They are very cute and you are so lucky!! hugs Angy Those boys are amazing and I am so glad things are going great for them. They are very cute and you are so lucky!!

hugs
Angy

]]> Comment on The Gift by Lucy Mennona http://www.fetalhope.org/blog/?p=5#comment-42 Lucy Mennona Thu, 08 May 2008 14:19:33 +0000 http://www.fetalhope.org/blog/?p=5#comment-42 Jenny- It brings me to tears when I hear anything about this desease. We were diagnosed with it at 16 weeks. We ended in Tampa with in 3 daysafter finding out the terrible news that our twins were dying. Our twins had the surgery by Dr. Q.; Unfortunately only one of our twins survived. Karissa is her name. We know that our twin will forever watch over our family from heaven. Even though we are aware of how lucky we are, I still have a void in my heart. Our family went to the Fetal Reunion in Tampa a few years ago. I'm not sure if they are doing it this year. I haven't heard. If anyone has info on the next one let me know. Warm Regards, Lucy Jenny- It brings me to tears when I hear anything about this desease. We were diagnosed with it at 16 weeks. We ended in Tampa with in 3 daysafter finding out the terrible news that our twins were dying. Our twins had the surgery by Dr. Q.; Unfortunately only one of our twins survived. Karissa is her name. We know that our twin will forever watch over our family from heaven. Even though we are aware of how lucky we are, I still have a void in my heart.
Our family went to the Fetal Reunion in Tampa a few years ago. I’m not sure if they are doing it this year. I haven’t heard. If anyone has info on the next one let me know.
Warm Regards, Lucy

]]> Comment on I am the Mother of Twins! by jennifer c http://www.fetalhope.org/blog/?p=4#comment-9 jennifer c Mon, 17 Mar 2008 21:35:14 +0000 http://www.fetalhope.org/blog/?p=4#comment-9 I too am the mother of TTTS survivors and I am so sorry for your loss. This is such a devistating condition with such uncertain outcomes. I had fetoscopic laser surgery at 22 weeks after 8 amnioreductions starting at 17 weeks gestation. My twins just turned 2 and are doing well. I will never ever forget the daily emotional pain of the pregnancy and the unknown. thanks for your story I too am the mother of TTTS survivors and I am so sorry for your loss. This is such a devistating condition with such uncertain outcomes. I had fetoscopic laser surgery at 22 weeks after 8 amnioreductions starting at 17 weeks gestation. My twins just turned 2 and are doing well. I will never ever forget the daily emotional pain of the pregnancy and the unknown. thanks for your story

]]> Comment on I am the Mother of Twins! by Jennifer http://www.fetalhope.org/blog/?p=4#comment-6 Jennifer Fri, 14 Mar 2008 20:10:30 +0000 http://www.fetalhope.org/blog/?p=4#comment-6 I know this story and lived through it with you and yet am still amazed at your grace and the strength you have. God bless you and your amazing miracle of a little boy! You are doing amazing things and providing HOPE to so many. I know this story and lived through it with you and yet am still amazed at your grace and the strength you have. God bless you and your amazing miracle of a little boy! You are doing amazing things and providing HOPE to so many.

]]> Comment on I am the Mother of Twins! by Molly http://www.fetalhope.org/blog/?p=4#comment-5 Molly Fri, 14 Mar 2008 00:55:33 +0000 http://www.fetalhope.org/blog/?p=4#comment-5 I am also a mother of twin boys who survived TTTS. Our story is on the fetalhope website in the stories section, Tyson and Trevor's story. They have just recently celebrated their second birthday, but everyday I am so aware of what a blessing they are. I feel for those who have lost their babies. I just want everyone to know that there IS hope. Our faith in God was central to our struggle. Thanks to fetalhope.org for all you do to raise awareness and spread the message about TTTS! I am also a mother of twin boys who survived TTTS. Our story is on the fetalhope website in the stories section, Tyson and Trevor’s story. They have just recently celebrated their second birthday, but everyday I am so aware of what a blessing they are. I feel for those who have lost their babies. I just want everyone to know that there IS hope. Our faith in God was central to our struggle. Thanks to fetalhope.org for all you do to raise awareness and spread the message about TTTS!

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